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The good news: We have a breakthrough cure for sickle-cell disease, using CRISPR and gene-editing technology.

The bad news: It’s owned by a private company that will charge $2.2M for a course of treatment.

Pharmaceutical research should be publicly-funded, and its results should go directly into public domain, where private providers can compete on price for manufacture and distribution. For a fraction of the money we spend on missiles and remote military bases, we can save so many lives instead.

“FDA approves cure for sickle cell disease, the first treatment to use gene-editing tool CRISPR”

#healthcare #medicine #capitalism

https://www.nbcnews.com/health/health-news/fda-approves-cure-sickle-cell-disease-first-treatment-use-gene-editing-rcna127979


"Incentives matter!"

"Goodhart's Law holds that 'When a measure becomes a target, it ceases to be a good measure.'"

"Give an MBA within HCA a metric ("get patients out of bed quicker") and they will find a way to hit that metric ("send patients off to die somewhere else, even if their doctors think they could recover")"

From: https://pluralistic.net/2023/08/05/any-metric-becomes-a-target/

This is so depressing, @pluralistic ☹️

#healthcare


A nation that fails to keep its citizens alive is a failing nation. That is the US today.

#healthcare #cultureWars #inequality


Gender-affirming care—for ADULTS—is now predictably under attack in #Texas. This is part of a Republican plan of genocide underway against #trans people. We need cis allies to be loud and angry on our behalf. Pay attention, this doesn't end here or with us:

https://www.texastribune.org/2023/04/25/transgender-health-care-legislature/ via @texastribune

#LGBTQIA+ #transgender #transphobia #HumanRights #Healthcare #news #Politics #TXlege #USpol #gender


The OECD health report also shows that the United States spends the most money on health care and yet fares poorly in important health outcomes, including life expectancy and avoidable mortality. My short article on this topic here:
https://wp.me/p4LWPX-tp

#Healthcare #Mortality


🤑 American Exceptionalism — where you pay the highest price for average healthcare products & services.

The big robbery.

#Healthcare #HealthcareThieves #HealthcareIndustry #PriceGouging #Ripoff #FairPricing

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